Only UK Biobank has access to participant data with personal identifiers (which is necessary so that we can add more information about each participant once it is available) and we limit the number of people within uk Biobank who have access to these personal identifiers. Biobanks are designed and built with the aim of being long-term research infrastructures, while public promotional bodies might expect biobanks to become financially self-sufficient soon after operations begin. To preserve their viability and longevity, biobanks rely largely on the added value provided by their users to enrich and consolidate their data collection.

Category : 미분류